How To Prepare For Extended Hospital Stays For Patients & Families

August 23, 2024
Precede Foundation

Pancreatic cancer often requires extensive treatment, which can result in long hospital stays. Whether it’s due to complex surgeries, complications, or the need for intensive care, patients and their families must be prepared for the challenges these stays present. Proper planning can reduce physical and emotional burdens, making the experience more manageable. This guide will walk you through essential preparations, offering practical tips and emotional support strategies to ensure you’re well-equipped to handle an extended hospital stay.

Preparing For Extended Hospital Stays

Extended hospital stays for pancreatic cancer patients are not uncommon. These stays are often necessary due to the aggressive nature of the disease and the intensity of the treatments involved. which are complicated and lengthy procedures. Complications from chemotherapy or radiation therapy, such as infections or severe side effects, can lead to a longer hospital stay.

Understanding why these stays are needed helps set realistic expectations. It’s essential to be aware that the duration of these stays can vary significantly depending on the patient’s condition and the type of treatment being administered. Some patients may only need to stay for a few days, while others may require weeks of care. Knowing what to expect can reduce some of the anxiety associated with hospitalization.

Preparing The Patient For An Extended Hospital Stay

  • Comfortable Clothing

When preparing for a hospital stay, it’s important to pack thoughtfully. Start with comfortable clothing—loose-fitting garments that are easy to put on and take off, along with cozy socks and slippers, can make the patient feel more comfortable. Hospitals can be chilly, so include layers like sweaters or shawls.

  • Personal Hygiene

Personal hygiene is another important factor. Bring along toothbrushes, toothpaste, skincare products, and any other necessary grooming supplies. For patients with specific needs, such as sensitive skin or particular preferences, packing their preferred brands can make a significant difference in comfort.

  • Entertainment

Entertainment is also important during long stays. Hospitals can be mentally exhausting, so pack items that can help pass the time. Books, tablets, puzzles, or crafts can provide a distraction and help maintain a positive mindset.

  • Medication Management

In terms of medical preparation, ensure that all current medications are packed and easily accessible. Bring them in their original bottles, along with a detailed list that includes dosage and timing. This list is essential for the medical team to continue or adjust treatments as necessary.

  • Pre-Hospitalization Requirements

Before hospitalization, there may be specific instructions from the healthcare team, such as fasting before surgery or adjusting medications. It’s crucial to follow these guidelines closely to avoid any delays or complications upon arrival at the hospital.

  • Mindset

Mental and emotional preparation is equally important. Encourage the patient to adopt a positive mindset, focusing on their strength and determination. Techniques such as meditation, deep breathing exercises, or listening to calming music can help manage anxiety.

  • Staying Connected

Staying connected with loved ones helps you feel better. Encourage patients to keep in touch through phone calls, video chats, or in-person visits when possible. Bringing a journal for reflection or writing letters can also help patients process their emotions during this challenging time.

Preparing Family Members For An Extended Hospital Stay

  • Transportation And Accommodations

Transportation and accommodation are also critical considerations. Depending on the hospital’s location and the expected length of stay, families may need to arrange nearby accommodations. Many hospitals offer accommodations, or there may be nearby hotels or temporary rentals available. Consider transportation options such as public transit, ride-sharing services, or arranging carpooling with other family members to reduce stress.

  • Emotional Toll

The emotional toll on family members during an extended hospital stay can be tough. It’s important to acknowledge this and develop strategies for coping. Talking with a counselor, joining a support group, or engaging in religious or spiritual practices can provide much-needed comfort and support.

  • Support Networks

Support networks are crucial during this time. Family members should lean on friends, extended family, or community resources for help. It’s okay to ask for assistance, whether it’s running errands, preparing meals, or simply offering emotional support. Remember that caring for oneself is essential to being able to care for the patient.

  • Hospital Bag For Family

Family members who might need to stay overnight at the hospital should prepare a hospital bag. Include snacks, water bottles, a change of clothes, toiletries, and any necessary medications. These items can make an unexpected overnight stay more manageable.

  • Comfort Items

Bringing comfort items can also make the hospital environment more bearable. A favorite blanket, pillow, or even a small lamp for softer lighting can make the environment more comfortable during what can be a stressful time.

Making The Hospital Stay As Comfortable As Possible

  • Decorating With Personal Items

Personalizing the hospital room can make a big difference in the patient’s comfort. Bringing photos, children’s drawings or small decorations can help create a more home-like atmosphere. These personal touches provide emotional comfort and can help lift the patient’s spirits during a long stay.

  • Technology And Connectivity

Technology and connectivity are also important. Bringing devices such as laptops or tablets allows patients to stay connected with the outside world. Many hospitals offer Wi-Fi, enabling patients to stream movies, listen to music, or video chat with loved ones, helping to reduce feelings of isolation.

  • Daily Routine

Establishing a daily routine can provide structure and reduce anxiety during an extended hospital stay. Simple activities like morning stretches, reading, or scheduled naps can help create a routine. A routine gives patients something to look forward to and can help make hospital life more bearable.

  • Balanced Diet

Maintaining a balanced diet is essential for recovery, even during a hospital stay. Coordinate with hospital nutritionists to ensure the patient has access to nutritious meals that meet their dietary needs. If permitted, bringing favorite snacks or meals from home can also encourage appetite and provide comfort.

  • Gentle Exercise

If the patient’s condition allows, gentle exercises such as walking around the ward or simple stretches can promote circulation and prevent stiffness. However, it’s crucial to consult with the healthcare team before starting any physical activity.

 

Thorough preparation for extended hospital stays can make a significant difference in the experience for both patients and their families. By addressing practical needs, emotional support, and care coordination, families can manage these challenging times with greater ease and confidence. Remember that you’re not alone—lean on your support networks, use available resources, and approach the situation with strength. With careful planning, you can make an extended hospital stay more manageable and help your loved one focus on what matters most: their recovery.

TrovaNow is dedicated to raising funds for the Pancreatic Cancer Early Detection (PRECEDE) Consortium. Our goal is to increase the 5-year survival rate from 12% to 50% within the next 10 years.

Join us in our mission and donate today to advance the early detection of pancreatic cancer and save lives. Visit www.trovanow.com to find out how you can get involved and make a donation today

Knowing When To Ask For Help

There’s strength in recognizing when you need additional support. If you’re feeling consistently overwhelmed, anxious, or depressed, it may be time to speak with a healthcare professional. Warning signs can include ongoing sleep trouble, loss of appetite, or emotional numbness.

Mental health care is an important part of cancer recovery. There are therapists, social workers, and cancer-specific counselors trained to support your unique needs. Don’t hesitate to seek them out.

Your medical team can help adjust medications or recommend physical therapy if your symptoms are impacting your daily life. Being honest about your struggles allows your care providers to offer better, more personalized support.

The path to recovery from pancreatic cancer is rarely straightforward. It’s a mix of triumphs and setbacks, strength and vulnerability. But through each high and low, healing is happening. Be gentle with yourself. Allow space for rest, reflection, and growth.

You don’t have to go through this journey alone. With the right support, emotional, physical, and practical, you can move forward, one step at a time. And remember, every day you show up for yourself is a victory.

At TrovaNOW, we’re focused on finding a cure for pancreatic cancer. Every test and discovery brings us closer to better treatments and saving lives. Join us and learn more at TrovaNOW.

PRECEDE Foundation Inaugural Gala

Join us for a night at the Tribeca Rooftop 360 on October 28th at 3:00pm PDT to honor the following awards:

Nobility in Science Award

Raymond C. Wadlow, MD

Catalyst for Change Award

Ambry Genetics Corporation

Legacy Awards

Jeffrey Johnson, Esq.

Jonathan Morris, Esq.

PRECEDE Leadership and Compassionate Care Award

Jessica Everett, MS, CGC

Co-Chairs

Scott Berger | Michael Gershenson | Tracy Chen

Honorary Chairs

Diane Simeone, MD | Jamie Brickell

Get tickets here.

A Long and Steadfast Battle Against a Terrible Cancer

Raymond Wadlow lost his mom, Emily Couric, to pancreatic cancer in 2001. Today he’s an oncologist pushing for early detection.

Visual related to why building muscle matters (strength training after cancer treatment)

Why Building Muscle Matters (Strength Training After Cancer Treatment)

Cancer treatment is an incredibly challenging journey, often leaving survivors physically and emotionally drained. While survival is the primary goal, the road to recovery requires more than just healing from the illness itself, it requires rebuilding strength and endurance. One of the most effective ways to regain strength and improve quality of life after treatment is through strength training.

In this blog, we’ll explore why building muscle matters after cancer treatment, how strength training supports recovery, and why it’s important to include physical activity in a full recovery plan.

The Importance of Muscle Health in Cancer Recovery

During cancer treatment, particularly chemotherapy and radiation, the body goes through a variety of changes, including significant muscle loss. This can lead to fatigue, weakness, and a decrease in overall functional capacity. Survivors may also experience joint pain, decreased bone density, and difficulty with mobility. When muscles are weakened, it becomes more difficult to perform everyday tasks, affecting the ability to return to normal life.

Muscle health is crucial for maintaining daily functioning, increasing stamina, and improving the body’s ability to heal. Building muscle after cancer treatment can help counteract the physical decline caused by treatments, reduce fatigue, and increase energy levels. Strong muscles are also important for stability, balance, and preventing falls or injuries, which can be especially crucial as the body regains strength.

Benefits of Strength Training After Cancer Treatment

  1. Physical Benefits

Strength training is an excellent way to rebuild muscle mass lost during cancer treatment. By focusing on resistance exercises that challenge the muscles, you can restore strength and regain physical independence. Whether through bodyweight exercises, free weights, or resistance bands, strength training helps increase muscle mass, boost stamina, and promote flexibility.

It also improves bone density, which is particularly important for cancer survivors who may be at risk of osteoporosis due to treatments like chemotherapy and hormone therapy. As you build muscle, you reduce the risk of bone fractures and improve posture and stability.

  1. Mental and Emotional Benefits

Physical activity, especially strength training, has significant mental health benefits. Exercise releases endorphins, which are natural mood boosters that help reduce anxiety and depression. Cancer survivors often experience feelings of helplessness and loss of control. Strength training helps you regain control over your body, build confidence, and feel accomplished.

Strength training offers mental benefits like improved mood and focus. Research shows that regular exercise can also help manage the cognitive effects of cancer treatment, such as “chemo brain,” which can cause memory issues, difficulty concentrating, and brain fog. Strength training can improve cognitive function, helping survivors feel more mentally sharp and focused.

  1. Long-Term Health Benefits

Strength training can help prevent long-term complications of cancer treatment. Conditions such as sarcopenia (muscle wasting) and metabolic syndrome, which involves high blood pressure, high blood sugar, and abnormal cholesterol levels, are common among cancer survivors. Building muscle through strength training can help manage these conditions and reduce the risk of chronic diseases.

Muscle health supports overall immune function and metabolism. Strong muscles help regulate blood sugar levels, enhance circulation, and improve the body’s ability to absorb nutrients, critical for recovery and long-term health.

The Science Behind Strength Training for Cancer Survivors

Strength training works by creating small tears in muscle fibers, which, when repaired, become stronger over time. After cancer treatment, the body may be in a weakened state, but through consistent resistance training, it begins to rebuild muscle tissue. This process is essential for improving muscle mass and overall body strength.

Strength training promotes hormone regulation, which can be disrupted by cancer treatments. Chemotherapy and hormone therapy often interfere with estrogen and testosterone levels. Regular strength training helps balance these hormones, which can improve mood, energy levels, and general well-being.

Studies have shown that strength training can help cancer survivors reduce fatigue, improve cardiovascular health, and maintain a healthy weight. This holistic approach is vital to fully recovering from the effects of cancer treatment and returning to a normal, active lifestyle.

Key Considerations When Starting Strength Training Post-Treatment

Starting strength training after cancer treatment should be approached with care. The body may be more sensitive and vulnerable in the recovery phase, so it’s essential to consult with a healthcare provider or physical therapist before beginning an exercise program.

  • Start Slow and Progress Gradually: Don’t jump into intense workouts right away. Begin with low-impact exercises that focus on mobility, flexibility, and core strength. Gradually increase the intensity and duration of your workouts as your body adapts. Listen to your body, rest when needed, and avoid pushing too hard.
  • Focus on Recovery and Balance: Incorporating rest days into your routine is just as important as training days. Overtraining can lead to injury or burnout, so make sure you balance strength training with adequate recovery. This includes prioritizing sleep, nutrition, and hydration as part of your overall fitness plan.
  • Adapt Exercises to Your Body’s Needs: Cancer treatment can result in lingering side effects like joint pain, fatigue, and reduced range of motion. Modify exercises to accommodate these challenges. Resistance bands and light weights can be excellent starting points for those who need to ease into strength training.

Effective Strength Training Exercises for Cancer Survivors

Cancer survivors can begin their strength training journey with simple, low-impact exercises that target the major muscle groups. Here are some effective exercises to get started:

  1. Bodyweight Squats: Squats are a great full-body exercise that targets the legs, glutes, and core. Start by performing shallow squats and gradually increase the depth as you build strength.
  2. Wall Push-ups: Wall push-ups are an excellent way to build upper body strength without straining the shoulders or wrists. As you gain strength, progress to standard push-ups or modified knee push-ups.
  3. Resistance Band Exercises: Resistance bands are perfect for adding gentle resistance to exercises like bicep curls, shoulder presses, and leg extensions. They provide controlled resistance that’s easier on the joints.
  4. Dumbbell Exercises: Once you’ve built up some strength, you can incorporate light dumbbells for exercises like lunges, chest presses, and rows to continue building muscle.
  5. Core Workouts: Strengthening your core is essential for improving balance and stability. Exercises like planks, bird dogs, and leg raises are great for building a solid foundation of strength.

Building a Strength Training Routine

Creating a strength training routine that fits your needs is essential for long-term success. Here are some tips for creating a sustainable workout plan:

  • Frequency: Aim for two to three strength training sessions per week, spaced out to allow for adequate recovery.

  • Duration: Start with 20-30 minute sessions and gradually increase the time as your body becomes more accustomed to the routine.

  • Progression: Increase the resistance, repetitions, or sets as you build strength. A good rule of thumb is to challenge your muscles without overexerting yourself.

  • Consistency: Make strength training a regular part of your life, but be patient with the process. Progress may be slow, but every step forward is a victory.

Building muscle after cancer treatment is a powerful tool in the recovery process. Strength training not only helps rebuild muscle mass and physical strength, but it also provides emotional and mental benefits that can enhance overall well-being. By embracing a thoughtful, gradual approach to strength training, cancer survivors can regain control of their bodies, improve their health, and achieve a higher quality of life. Remember, consistency is key, strength comes over time.

In 2025, TrovaNow is expanding its impact—with a 40% increase in fundraising goals and more research sites dedicated to supporting cancer recovery. Visit www.trovanow.com to see how you can get involved and donate today.